We’ve Reached Our Fundraising Goal – Thank You!

Thank you to everyone who bought T-Shirts, mugs, and other apparel during our winter fundraiser! Because of you, we were able to reach our fundraising goal! The money raised will go to things like family events, book giveaways, workshops and more. We are strictly a volunteer-led group and everything raised goes right back into our community.


Looking for a Gift? Check out our New Merch!

Iowa City Autism Community | CAUSETEAM

(photo: blue t-shirt with a “Celebrate Neurodiversity” logo surrounded by butterflies, flowers, planets and a rocket ship)


Thinking about Christmas or the holidays? The Iowa City Autism Community is running a fundraiser through this CauseTeam page. We have an awesome design by a local, autistic artist – a variety of apparel, mugs, tote bags are available! This is a great way to not just support ICAC, but to educate the community about neurodiversity!

Funds go directly toward things like book and calm kit giveaways, support for mental health and sensory rooms in local schools, subsidizing free activities and field trips, free/reduced price online workshops, website maintenance, and more!


For more information about the artist behind this design and to see more of her work, please check out Ariane’s Instagram HERE.

(photo: a print of a stylized owl surrounded by flower and dot flourishes)

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(photo: silhouette of a walking black cat filled with a flower print, surrounded by leaves and more floral elements)

After School Special: The Experiences of Special Needs Children and Their Families in ICCSD Before and After School Programs

After School Special 

The Experiences of Special Needs Children and Their Families in ICCSD Before and After School Programs

Dina Bishara and Laura Crossett
Mental Health, Special Education, and Disability Advocacy Group |
September 2021

This document contains personal accounts of families’ experiences attempting equal access for their children in before and after-school programs, or BASPs, in the Iowa City Community School District. Children who need specialized supports or accommodations based upon their disabilities often are not adequately supported, or they are simply not accepted into these BASPs. This contains testimony of families recounting some of the barriers they have faced.


“The Interagency Agreement paints a portrait of BASPs that is truly open, inclusive, and
supportive of all children. The reality for the parents of children with special needs, however, is quite different. We present below the stories of some of the many special needs children in our district with its BASPs. From children who were bullied or neglected, parents who had to take on extra jobs in order to pay for aides that a BASP required, and children who were simply kicked out of programs, leaving parents scrambling to find and pay for after school childcare, many special needs kids have a very different experience than their peers, and their families face additional and undue burdens. These are some of their stories.”


Access the document here –  After School Special 




Iowa Autism Services and Supports Survey

Iowa Autism Services and Supports Survey:


The Iowa Regional Autism Assistance Program Expert Panel and Iowa Autism Council would like to hear from parents, family members, individuals, and providers. We want to know how Iowa can improve services and supports for individuals with Autism Spectrum Disorder (ASD) and their families. Please take a few minutes to fill out this quick survey, which will close 10/8/2021. Thank you!




Background:  In early 2015, a strategic planning committee was tasked with developing a statewide strategic plan to improve services and supports for individuals with ASD and their families. The committee included family members along with educational, medical, and community service providers. The committee identified five focus areas and 13 strategies for the 5-year strategic plan with a vision to “ensure that all Iowans with Autism Spectrum Disorder (ASD) have the opportunity to develop the skills and knowledge necessary to live independent and interdependent lives within their community and to reach their full potential.”  Responses will help with the update of Iowa’s Strategic Plan 2016-2021: To Improve Services and Supports for Individuals with Autism Spectrum Disorder and their Families.

CARE Looking for New Board Members

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ARE YOU INTERESTED IN HELPING CONNECT PARENTS/GUARDIANS and AUTISTIC ADULTS TO AUTISM/NEURODIVERGENCE-RELATED RESOURCES? The Corridor Autism Resource Expo (CARE) is in need of a couple new Board Members as we are planning our October 8, 2022 event. We need people who are 1) responsible AND reliable, 2) energetic, 3) motivated to support and advocate for parents/guardians and autistic adults. The kinds of things we need help with are marketing, managing exhibitors, planning and executing the event, etc. Monthly meetings most of the year, becoming more frequent as we get closer to the event. The number of people doing this work (and other advocacy work) is very small- and honestly we are getting burned out and need help. Please consider if you might be able to commit to this work. Comment below or email me with questions: iowadina@yahoo.com

UAY Neurodivergent Teen Hangout Resuming


United Action For Youth is resuming their hangout for neurodivergent teens! All members of the neurodivergent community are welcome to attend the Swaim Youth Center’s Low Stim Night on the first Wednesday of each month from 4-7pm. There will be reduced lighting and volumes, weighted blankets, and noise-canceling headphones available. A caregiver should accompany any teen who may need 1:1 support as UAY staff is limited during these events. Snacks provided.

For more information, please contact UAY.

Connect With Others Via Zoom

Sue Askeland is currently hosting groups for autistic high schoolers, grandparents of autistic individuals and for autistic self-advocates. Please click the links for more information about how to sign up and for meeting times.


Autism Society of Iowa Support Group for High School Students with Autism

  • When: Wednesday Nights at 7:00 PM
  • Where:  Zoom links will be sent to those registered prior to weekly meetings
  • Facilitator: Sue Askeland
  • Click here for more information and to register for the group.


Autism Society of Iowa Self- Advocates FB Group

  • Click here to register to receive information on upcoming Self- Advocates meetings.
  • Click here to join the Self-Advocates FB group.
  • Online support for self-advocates to discuss issues with other self-advocates throughout Iowa

Iowa City: Grandparent Support Group

COVID Update

Due to rising COVID numbers in our community, we are still exercising caution when organizing activities. Many of our usual events, such as library browsing hours, continue to be placed on hold for the time being. We hope that you and your family are well during this difficult time and we look forward to seeing everyone again soon.

Virtual ICAC Workshop Opportunity – Join Dr. Mona Delahooke on Understanding Challenging Behaviors

You are invited to attend a virtual workshop with Dr. Mona Delahooke on Saturday, September 18, 1:00pm-2:30pm. Mona’s book, Beyond Behaviors: Using Brain Science and Compassion to Understand and Solve Children’s Behavioral Challenges, is now #1 in Clinical Psychology on Amazon.
Registration is through Tanager Place’s Meraki Institute’s page and is $10- https://merakiinstitute.org/…/autism-workshop-series…/
Dr. Delahooke presents an approach to challenging behavior that is based on relationship building, empathy, and an understanding of the neuroscientific underpinnings of maladaptive behavior.
This training will introduce a new approach to solving children’s behavioral challenges, focusing on building a child’s foundation for emotional and behavioral control and moving beyond paradigms that focus on compliance and surface behaviors.
Dr. Delahooke will describe behaviors as the tip of the iceberg, important signals that we should address by seeking to understand a child’s individual differences in the overarching context of relational safety.
Featuring helpful worksheets and charts, this training will provide educators, parents, early childhood interventionists, and providers across disciplines tools and techniques to reduce behavioral challenges and promote psychological resilience and satisfying, secure relationships.
Understand the “Developmental Iceberg” and how it helps us discover how to support each child and family’s individual needs.
Understand the 4 states of the nervous system that inform us what to do in real time when managing children’s behavioral challenges.
Describe how caregivers, providers and teachers can use the “therapeutic use of self” when working with vulnerable children, regardless of their diagnosis.
Describe the paradigm shift that is beginning across the country based on neuroscience research..
May be an image of text that says "I often wonder about the ..message we give to children when we ask them to "quiet" their hands or bodies or otherwise conform behaviorally What happens to their nervous system (positively or negatively) when we ask them to stop an action that their body is instructing them to do? Dr. Mona Delahooke, Beyond Behaviors: Using Brain Science and Compassion to Understand and Solve Children's Behavioral Challenges"

Join Other Autistic and Neurodivergent Adults on Discord

Join Other Autistic and Neurodivergent Adults on Discord

Our server on Discord allows autistic adults in the Iowa City and surrounding areas to connect and chat about what interests them the most. This is a private online community moderated by The Iowa City Autism Community.Please note that this group is restricted to only neurodivergent adults – that is, adults with one or more conditions such as autism, ADHD, dyslexia, etc. (As a note, self-diagnosis is totally valid.) We ask that you please respect the privacy of this group by not joining if you are not neurodivergent.

Discord is a community-based chat app (desktop and mobile) that is a combination between a message board and interactive chat. Users may remain anonymous if they wish.

If you want to learn more about Discord before joining our server, here’s an overview and a beginner’s guide.

Join the Neurodivergent Iowa City Discord Server!